Paroxysmal nocturnal hemoglobinuria (PNH) Registry

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Paroxysmal nocturnal hemoglobinuria (PNH) Registry

Brief description of study

This is a non interventional registry to gather information on the clinical presentation and outcomes of patients with PNH. The PHN Registry will capture post-marketing data on patients treated with Soliris. It will collect information on the progression of disease on the Soliris treated and untreated PNH population including those patients who discontinue treatment.

Clinical Study Identifier: 11-02227

ClinicalTrials.gov Identifier: NCT01374360

Principal Investigators: David J Araten, iConnect Langone.

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Perlmutter Cancer Center

Clinical Trials & Research Studies