Paroxysmal nocturnal hemoglobinuria (PNH) Registry

Brief description of study

This is a non interventional registry to gather information on the clinical presentation and outcomes of patients with PNH. The PHN Registry will capture post-marketing data on patients treated with Soliris. It will collect information on the progression of disease on the Soliris treated and untreated PNH population including those patients who discontinue treatment.


Clinical Study Identifier: 11-02227
ClinicalTrials.gov Identifier: NCT01374360
Principal Investigator: David J Araten.


If you are registered as a volunteer, please login to the dashboard to send referrals.

Contact the research team to learn more about this study.

By clicking "Contact Research Team", your contact information will be sent securely to the research staff associated with the study. You will also receive a copy of this email in your inbox, as well as other notifications to determine your participation status in the study.