Determining the Natural and Unnatural History of Anomalous Aortic Origin of a Coronary Artery (AAOCA) with an Interarterial or Intraconal or Intramural course: Establishing a Multi- Institutional Registry

Brief description of study

Every year, specially trained personnel from the Congenital Heart Surgeons Society (CHSS) will call you to find out how you/your child is doing. The questionnaire is a survey that you will be asked to complete over the phone regarding your/your child’s health. It should not take longer than 15-20 minutes. They will ask questions about the medication you/your child is receiving, any exercise limitations, your/your child’s quality of life and any surgery or procedures done since the previous questionnaire.

Clinical Study Identifier: 11-00731
Principal Investigator: Ralph S. Mosca.
Other Investigator: Colin Kit Lun Phoon.

If you are registered as a volunteer, please log in to contact the study team/express interest in this study.

Contact the research team to learn more about this study.

By clicking "Contact Research Team", your contact information will be sent securely to the research staff associated with the study. You will also receive a copy of this email in your inbox, as well as other notifications to determine your participation status in the study.