Site for Study of a Prospective Adult Research Cohort with Inflammatory Bowel Disease (SPARC IBD)
Brief description of study
Site for IBD Plexus is a research and information exchange platform whose goal is to accelerate research and transform the care of patients with IBD. IBD Plexus will unite clinicians, patients, academic and industry researchers to answer questions that are critically important to advance the field of IBD research and to accelerate progress toward precision medicine. IBD Plexus connects and centralizes clinical, patient-reported, biosamples and derived ‘omic/ expression data across multiple patient cohorts. IBD Plexus consists of a biobank, registries to capture clinical, patient-reported, and biosample data, a centralized analytics lab to conduct omics and expression analysis, a large data management platform to house, organize, aggregate and disseminate data, and a researcher portal which provides access to prep-to-research tools and high performance cloud computing. The various components of IBD Plexus provide the infrastructure and capacities to dramatically shift the IBD research paradigm by facilitating novel, potentially groundbreaking studies into IBD’s causes and treatments. These components will include data from the CCFA’s Quality of Care Initiative, the CCFA Partner’s cohort study, the RISK cohort study, and the SPARC IBD study described in this protocol.
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