Improving Genetic Testing Utilization in Black Individuals with Hypertrophic Cardiomyopathy: A Mixed Methods Study

Brief description of study

The purpose of this research study is to help improve the use of genetic testing in Black persons with a diagnosis with hypertrophic cardiomyopathy (HCM). Black populations are underrepresented in genetic testing, both in HCM and in general. This underrepresentation may limit the ability of scientists to fully interpret genetic testing results in this group. The study has two parts. Part 1 includes a one-time inperson visit to NYU Langone and Part 2 is a one-time visit that can be done remotely. Part 1 involves completing surveys and providing a blood sample while part 2 involves an individual interview and completing a genetic literacy assessment.

Clinical Study Identifier: s20-01761

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