Hunter Outcome Survey: A Global Multi-Center Long-Term Observational Registry of Patients with Hunter Syndrome
Are you eligible to participate in this study?
You may be eligible for this study if you meet the following criteria:
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Conditions: Hunter Syndrome (mucopolysaccharidosis Ii)Other Sphingolipidosis
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Age: Between 2 - 99 Years
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Gender: Male or Female
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Other Inclusion Criteria:
- Diagnosis of Hunter syndrome (biochemically and/or genetically)
- Signed and dated written informed consent, as per either a or b below:
- Prospective Patients: Signed and dated written informed consent from the patient or parent and/or patient’s LAR
- Historical Patients: Signed and dated informed consent from the patient’s LAR
You may not be eligible for this study if the following are true:
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- Patients enrolled in an interventional clinical trial
- Patients receiving treatment for Hunter syndrome with an ERT product other than Elaprase
If you are registered as a volunteer, please log in to contact the study team/express interest in this study.