Hunter Outcome Survey: A Global Multi-Center Long-Term Observational Registry of Patients with Hunter Syndrome

Are you eligible to participate in this study?

You may be eligible for this study if you meet the following criteria:

  • Conditions:
    Hunter Syndrome (mucopolysaccharidosis Ii)
    Other Sphingolipidosis
  • Age: Between 2 years - 99 years
  • Gender: Male or Female
  • Other Inclusion Criteria:
    1. Diagnosis of Hunter syndrome (biochemically and/or genetically)
    2. Signed and dated written informed consent, as per either a or b below:
      • Prospective Patients: Signed and dated written informed consent from the patient or parent and/or patient’s LAR
      • Historical Patients: Signed and dated informed consent from the patient’s LAR

You may not be eligible for this study if the following are true:

    1. Patients enrolled in an interventional clinical trial
    2. Patients receiving treatment for Hunter syndrome with an ERT product other than Elaprase

If you are registered as a volunteer, please log in to contact the study team/express interest in this study.