Hunter Outcome Survey: A Global Multi-Center Long-Term Observational Registry of Patients with Hunter Syndrome

Are you eligible to participate in this study?

You may be eligible for this study if you meet the following criteria:

  • Conditions:
    Hunter Syndrome (mucopolysaccharidosis Ii)
    Other Sphingolipidosis
  • Age: Between 2 - 99 Years
  • Gender: Male or Female
  • Other Inclusion Criteria:
    1. Diagnosis of Hunter syndrome (biochemically and/or genetically)
    2. Signed and dated written informed consent, as per either a or b below:
      • Prospective Patients: Signed and dated written informed consent from the patient or parent and/or patient’s LAR
      • Historical Patients: Signed and dated informed consent from the patient’s LAR

You may not be eligible for this study if the following are true:

    1. Patients enrolled in an interventional clinical trial
    2. Patients receiving treatment for Hunter syndrome with an ERT product other than Elaprase

If you are registered as a volunteer, please log in to contact the study team/express interest in this study.

Contact the research team to learn more about this study.

By clicking "Contact Research Team", your contact information will be sent securely to the research staff associated with the study. You will also receive a copy of this email in your inbox, as well as other notifications to determine your participation status in the study.