Long term outcomes and quality of life in PHACE syndrome

Are you eligible to participate in this study?

You may be eligible for this study if you meet the following criteria:

  • Conditions:
    2. Diagnosis Of Definite Phace, As Established In The 2016 Consensus Guidelines
  • Age: Between 10 years - 99 years
  • Gender: Male or Female
  • Other Inclusion Criteria:
    1. Diagnosis of definite PHACE (posterior fossa abnormalities, hemangiomas, arterial anomalies, cardiac anomalies, and eye anomalies)

You may not be eligible for this study if the following are true:

    1. Diagnosis of possible PHACE or facial hemangioma without PHACE diagnosis



If you are registered as a volunteer, please log in to contact the study team/express interest in this study.