Primary Ciliary Dyskinesia Foundation (PCDF) Clinical Registry

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Primary Ciliary Dyskinesia Foundation (PCDF) Clinical Registry

Brief description of study

Primary ciliary dyskinesia (PCD) is a disease that results in chronic cough and recurrent respiratory and sinus infections, among other symptoms. PCD is caused by dysfunction of cilia, which are tiny hair-like structures that line the sinus and respiratory tract, as well as other parts of the body. Our purpose for this research study is to learn more about PCD through the creation of a secure electronic clinical registry. Through this registry, The researchers will be able to follow people living with PCD over time to learn more about how PCD affects people’s health and the treatment people take.

Clinical Study Identifier: s21-00809

Principal Investigator: Robert John Giusti.

Other Investigators: Mikhail Kazachkov, Christine Ann Mavaro.

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