Site for Primary Ciliary Dyskinesia Foundation (PCDF) Registry: A longitudinal study of patients with primary ciliary dyskinesia

Are you eligible to participate in this study?

You may be eligible for this study if you meet the following criteria:

  • Conditions:
    Primary Ciliary Dyskinesia
  • Age: Between 0 Year(s) - 90 Year(s)
  • Gender: Male or Female
  • Other Inclusion Criteria:
    1. Patients diagnosed with primary ciliary dyskinesia (PCD)
    2. Provide written informed consent and assent for minors as applicable
    3. Patients at a PCD Foundation Clinical and Research Network center

You may not be eligible for this study if the following are true:

    1. Does not understand the requirements of the study
    2. Is not willing to provide written informed consent
    3. Inability of parent/guardian to understand the requirements of the study

If you are registered as a volunteer, please log in to contact the study team/express interest in this study.

Contact the research team to learn more about this study.

By clicking "Contact Research Team", your contact information will be sent securely to the research staff associated with the study. You will also receive a copy of this email in your inbox, as well as other notifications to determine your participation status in the study.