Primary Ciliary Dyskinesia Foundation (PCDF) Clinical Registry

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Primary Ciliary Dyskinesia Foundation (PCDF) Clinical Registry

Are you eligible to participate in this study?

You may be eligible for this study if you meet the following criteria:

Conditions:
Primary Ciliary Dyskinesia
Age: Between 0 Year(s) - 90 Year(s)
Gender: Male or Female

Other Inclusion Criteria:
1. Patients diagnosed with primary ciliary dyskinesia (PCD)
2. Provide written informed consent and assent for minors as applicable
3. Patients at a PCD Foundation Clinical and Research Network center

You may not be eligible for this study if the following are true:

1. Does not understand the requirements of the study
2. Is not willing to provide written informed consent
3. Inability of parent/guardian to understand the requirements of the study

Contact the research team to learn more about this study.

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By clicking "Contact Research Team", your contact information will be sent securely to the research staff associated with the study. You will also receive a copy of this email in your inbox, as well as other notifications to determine your participation status in the study.

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