A Single-Center Observational Barrier Assessment and Implementation of a Tailored Educational Intervention for Families of Children with Epilepsy in a Medically Underserved Population

Brief description of study

This study aims to identify the socioeconomic/cultural disparities and patient perspective barriers in a medically underserved population (Bellevue Hospital). This will be followed by an implementation period with the design of an individualized educational intervention for families of patients with pediatric epilepsy. This pilot study will incorporate the use of questionnaires, data analysis, educational intervention development, social media, and videography to both assess the inequality experienced by this population and improve their health outcomes. Studies have evaluated the patient and family perspectives on epilepsy surgery, but there has been no study to our knowledge that incorporates an educational component built from these results.

Clinical Study Identifier: s22-00514

Principal Investigator: Eveline Teresa Hidalgo.

Other Investigators: Hannah Kristen Weiss, Yosef Michael Dastagirzada, Dana Price, Gayatri Raj Ghosh, Patricia Cristine Dugan, Aaron Nelson.

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