Tuberous Sclerosis Complex Biosample Repository and Natural History Database Project

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Tuberous Sclerosis Complex Biosample Repository and Natural History Database Project

Brief description of study

The purpose of the project is to learn more about tuberous sclerosis complex (TSC) which may lead to new treatments for conditions that affect different areas of the body such as the brain, kidney, lungs, and skin. The TSC Biosample Repository was established to provide a central biobank for the collection of blood, tissues, and cells from a vast number of individuals with TSC. The TSC Alliance Natural History Database, established in 2006 will serve as the central repository of de-identified clinical data associated with biosamples collected from individuals with TSC. The VARI Biorepository will distribute biosamples to researchers as approved by the TS Alliance.

Clinical Study Identifier: 07-033

Principal Investigator: Josiane Lajoie.

Other Investigator: Orrin Devinsky.

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