Fetal Ebstein Anomaly or Tricuspid Valve Dysplasia (FEAT) Registry

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Fetal Ebstein Anomaly or Tricuspid Valve Dysplasia (FEAT) Registry

Brief description of study

The purpose of this research study is to create a registry of children with a rare heart disease called Ebstein’s anomaly or tricuspid valve dysplasia. A registry collects information about individuals with a specific diagnosis. Since this disease is so rare, creating a registry will allow us to better understand this disease so that we can help treat the children with this illness and improve their care in the years to come.

Clinical Study Identifier: s21-01637

Principal Investigator: Ranjini Srinivasan.

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