Fetal Ebstein Anomaly or Tricuspid Valve Dysplasia (FEAT) Registry

Are you eligible to participate in this study?

You may be eligible for this study if you meet the following criteria:

  • Conditions:
    Ebstein Anomaly
  • Age: Between 14 Year(s) - 54 Year(s)
  • Gender: Female
  • Other Inclusion Criteria:
    1. Mothers of fetuses (ages 14-54) diagnosed with Ebstein anomaly and tricuspid valve dysplasia (EA/TVD) of any severity with normal segmental anatomy (Atrioventricular (AV) and ventriculoarterial (VA) concordance)
      • Mothers may be enrolled at any gestational age, up to the day of pregnancy outcome (elective termination of pregnancy, demise, or live-birth)
      • Singletons, twins or higher order multiples may be included

You may not be eligible for this study if the following are true:

    1. Mothers of fetuses diagnosed with EA/TVD in the context of abnormal segmental anatomy (AV and/or VA discordance) or other lesions, such as congenitally corrected transposition of the great arteries or pulmonary atresia with intact ventricular septum
    2. Unable or unwilling to provide consent



If you are registered as a volunteer, please log in to contact the study team/express interest in this study.

Contact the research team to learn more about this study.

By clicking "Contact Research Team", your contact information will be sent securely to the research staff associated with the study. You will also receive a copy of this email in your inbox, as well as other notifications to determine your participation status in the study.