Fetal Ebstein Anomaly or Tricuspid Valve Dysplasia (FEAT) Registry
Are you eligible to participate in this study?
You may be eligible for this study if you meet the following criteria:
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Conditions: Ebstein Anomaly
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Age: Between 14 Year(s) - 54 Year(s)
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Gender: Female
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Other Inclusion Criteria:
- Mothers of fetuses (ages 14-54) diagnosed with Ebstein anomaly and tricuspid valve dysplasia (EA/TVD) of any severity with normal segmental anatomy (Atrioventricular (AV) and ventriculoarterial (VA) concordance)
- Mothers may be enrolled at any gestational age, up to the day of pregnancy outcome (elective termination of pregnancy, demise, or live-birth)
- Singletons, twins or higher order multiples may be included
- Mothers of fetuses (ages 14-54) diagnosed with Ebstein anomaly and tricuspid valve dysplasia (EA/TVD) of any severity with normal segmental anatomy (Atrioventricular (AV) and ventriculoarterial (VA) concordance)
You may not be eligible for this study if the following are true:
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- Mothers of fetuses diagnosed with EA/TVD in the context of abnormal segmental anatomy (AV and/or VA discordance) or other lesions, such as congenitally corrected transposition of the great arteries or pulmonary atresia with intact ventricular septum
- Unable or unwilling to provide consent
If you are registered as a volunteer, please log in to contact the study team/express interest in this study.