Fetal Ebstein Anomaly or Tricuspid Valve Dysplasia (FEAT) Registry

Are you eligible to participate in this study?

You may be eligible for this study if you meet the following criteria:

  • Conditions:
    Ebstein Anomaly
  • Age: Between 14 Year(s) - 54 Year(s)
  • Gender: Female
  • Other Inclusion Criteria:
    1. Mothers of fetuses (ages 14-54) diagnosed with Ebstein anomaly and tricuspid valve dysplasia (EA/TVD) of any severity with normal segmental anatomy (Atrioventricular (AV) and ventriculoarterial (VA) concordance)
      • Mothers may be enrolled at any gestational age, up to the day of pregnancy outcome (elective termination of pregnancy, demise, or live-birth)
      • Singletons, twins or higher order multiples may be included

You may not be eligible for this study if the following are true:

    1. Mothers of fetuses diagnosed with EA/TVD in the context of abnormal segmental anatomy (AV and/or VA discordance) or other lesions, such as congenitally corrected transposition of the great arteries or pulmonary atresia with intact ventricular septum
    2. Unable or unwilling to provide consent



If you are registered as a volunteer, please log in to contact the study team/express interest in this study.