Qualitative interviews for the adaptation/development and validation of a questionnaire specific to Gaucher disease

Brief description of study

The purpose of this research study is to learn more about the experiences of adults and adolescents with Gaucher disease, and how having Gaucher disease affects people in their daily life. The information gathered in these interviews will be used to develop a questionnaire to ask people about their experience of living with Gaucher disease.


Clinical Study Identifier: s17-00770
ClinicalTrials.gov Identifier: NCTs17-00770


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