A single-center observational study of the prevalence and characteristics of clutter and hoarding disorder in an MS population

Brief description of study

The purpose of this study is to determine the prevalence of hoarding or cluttering in individuals with Multiple Sclerosis (MS), and to determine if this has an effect on quality of life. Although we have reason to believe that hoarding and/or clutter is a significant problem in the MS community, there are not studies addressing this problem. It is important to note that there may be many individuals who are not hoarders but do have significant clutter in their living space, and that may also have an effect on their quality of life. If you agree to participate in this study, you will be asked to complete two at-home sessions for this study, done on the computer: one initial session and then another session one year later. Each session will take about 20-30 minutes of your time. You will be asked to use an online link to fill out a brief demographic questionnaire (e.g. how many people live in your home, do you have any pets etc.) and four study questionnaires in a secure online database. This link will be e-mailed to you. We hope to collect data from 500 people over a two-year period.

Clinical Study Identifier: s17-01201
Principal Investigator: Joshua H Bacon.

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