Monitoring Juvenile Onset Recurrent Respiratory Papillomatosis (JORRP)

Brief description of study

This is a research program designed to identify the number of people who have Juvenile Onset Recurrent Respiratory Papillomas (JORRP). JORRP is a disease of wart-like growths in the throat and windpipe that develop before the age of 18. The warts are usually caused by human papilloma virus (HPV) 6 and 11. Many people are exposed to these viruses yet very few people will develop the disease. This study may help us treat JORRP better and learn if a vaccine can stop JORRP. The testing for this study will be done by Centers for Disease Control and Prevention (CDC). The purpose of the research project is to gather information from the biologic mother of a child with Juvenile Onset Recurrent Respiratory Papillomas (JORRP), and also obtain specimen (blood and tissue) from a routine surgical procedure that you will undergo as part of your clinical care regardless of whether or not you participate in this study. We are asking you to take part in this research study because you have medical condition being studied and/or are scheduled to have test/procedure as part of your clinical care.

Clinical Study Identifier: s16-02156
Principal Investigator: Scott M. Rickert
Currently Recruiting

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