Monitoring Juvenile Onset Recurrent Respiratory Papillomatosis (JORRP)

Are you eligible to participate in this study?

You may be eligible for this study if you meet the following criteria:

  • Conditions:
    Juvenile-onset Recurrent Respiratory Papillomatosis
  • Age: Between 0 years - 17 years
  • Gender: Male or Female
  • Other Inclusion Criteria:
    1. Subjects who are aged 0–17 years who have a clinic visit or treatment at participating centers during the study period
    2. Subjects meeting the case definition of JORRP based on presence of wart-like lesions in any upper aerodigestive tract site; AND histopathology demonstrating papillomas, WITH OR WITHOUT a history of symptomatic breathing, swallowing, and/or voice problems, AND/OR (2) well-documented history of papilloma based on surgical history and operative reports, even without histopathologic confirmation of papilloma
    3. Subjects have biologic mother or available parent/guardian for purposes of completing the maternal questionnaire.

You may not be eligible for this study if the following are true:

    1. Subjects who do not have a diagnosis of JORRP
    2. Subjects who are not aged 0-17 years at any time during the study period
    3. Subjects who did not give consent
    4. Subjects who are already included in this JORRP registry



If you are registered as a volunteer, please log in to contact the study team/express interest in this study.