Monitoring Juvenile Onset Recurrent Respiratory Papillomatosis (JORRP)
Are you eligible to participate in this study?
You may be eligible for this study if you meet the following criteria:
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Conditions: Juvenile-onset Recurrent Respiratory Papillomatosis
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Age: Between 0 years - 17 years
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Gender: Male or Female
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Other Inclusion Criteria:
- Subjects who are aged 0–17 years who have a clinic visit or treatment at participating centers during the study period
- Subjects meeting the case definition of JORRP based on presence of wart-like lesions in any upper aerodigestive tract site; AND histopathology demonstrating papillomas, WITH OR WITHOUT a history of symptomatic breathing, swallowing, and/or voice problems, AND/OR (2) well-documented history of papilloma based on surgical history and operative reports, even without histopathologic confirmation of papilloma
- Subjects have biologic mother or available parent/guardian for purposes of completing the maternal questionnaire.
You may not be eligible for this study if the following are true:
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- Subjects who do not have a diagnosis of JORRP
- Subjects who are not aged 0-17 years at any time during the study period
- Subjects who did not give consent
- Subjects who are already included in this JORRP registry
If you are registered as a volunteer, please log in to contact the study team/express interest in this study.