A Multicenter Multicountry Post Marketing Active Surveillance Taliglucerase Alfa Registry in Patients with Gaucher Disease
Brief description of study
The main purpose of this study is to assess the long-term safety and effectiveness of taliglucerase alfa (Elelyso/Uplyso) during normal medical care by collecting information on the good and bad effects of the taliglucerase alfa (Elelyso/Uplyso) prescribed to you/your child’s by your/your child’s doctor. By collecting and analyzing information from patients treated with taliglucerase alfa (Elelyso/Uplyso) we will be able to learn more about taliglucerase alfa (Elelyso/Uplyso) and provide the best information to other patients with Gaucher disease in the future. An observational study or registry means that no changes will occur in the way that you/your child are/is being treated because of your/your child’s participation in this study. Your/Your child’s study doctor will treat your/your child’s Gaucher disease the same as if you/your child were/was not in this study.
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