THE PROSPECTIVE NATURAL HISTORY OF FAMILIAL DYSAUTONOMIA

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THE PROSPECTIVE NATURAL HISTORY OF FAMILIAL DYSAUTONOMIA

Brief description of study

To create a database of clinical information collected from you/your child’s medical chart on a yearly basis from patients with familial dysautonomia (FD). This study is “observational” and “non-interventional”, meaning you/your child will not receive any treatments, drugs, or tests that are not part of your/your child’s standard clinical care.

Clinical Study Identifier: s16-01774

ClinicalTrials.gov Identifier: NCT03920774

Principal Investigator: Horacio Kaufmann.

Other Investigators: Patricio Alejandro Millar Vernetti, Maria Alejandra Gonzalez-Duarte Briseno.

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