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Parent Understanding of Discharge Instructions
The purpose of the study is to find out the best way to help parents understand instructions they get from doctors and nurses on how ... -
Cochlear implants and listening effort: the interaction of cognitive and sensory constraints
Hearing impairment is the third most prevalent chronic medical condition among older adults in the United States. Untreated, hearing loss can interfere with effective communication ... -
THE PROSPECTIVE NATURAL HISTORY OF FAMILIAL DYSAUTONOMIA
To create a database of clinical information collected from you/your child’s medical chart on a yearly basis from patients with familial dysautonomia (FD ... -
MICROBiome Involvement in Outcomes of Methotrexate Efficacy-RA
This is a prospective, observational, proof-of-principle study looking at the effects of the gut microbiome on the metabolism and response to methotrexate treatment and related ... -
Antiphospholipid Syndrome Alliance for Clinical Trials and International Networking ( APS ACTION ) International Clinical Database and Repository
This is a registry study, which collects information about patients and puts it in a computer program called a database. The purpose of this study ... -
Enhancing Clinical Outcomes in Patients with Nontuberculous Mycobacteria: A Longitudinal Study
The purpose of this study is to observe what happens to patients with non-tuberculous mycobacteria (NTM). NTM are bacteria that may cause infection in the ... -
Utility of Remote Home Monitoring Post Valvular Procedures
Valvular Procedures The purpose of this research study is to see whether providing patients with telehealth monitoring can reduce hospital readmission up to 90 days ... -
The Natural History of Partial Ligamentous Tears in the Wrist
The purpose of this study is to better understand common injuries in the wrist. Patients who fall or otherwise injure their hand or wrist can ... -
OUTCOMES AFTER REPAIR OF CHRONIC PECTORALIS MAJOR RUPTURE WITH ACHILLES TENDON ALLOGRAFT
The purpose of the study is to evaluate the outcomes after surgical reconstruction of chronic rupture of the pectoralis major tendon with achilles tendon allograft ... -
Gaucher Disease Outcome Survey (GOS)
Gaucher disease is one of several rare lysosomal storage disorders, affects 10,000-30,000 patients worldwide, and is classified into three clinical subtypes. Type 1 ...