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Type 1 Diabetes Pathway to Prevention Study (Natural History) Study
The goals of the TrialNet Pathway to Prevention Study are to gain information about the pathogenesis and natural history of type 1 diabetes (T1D), and ...Phase N/A
Non-Interventional
Accepts Healthy Volunteer
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Auditory Pathway Mapping in Pediatric Patients with Sensorineural Hearing Loss Being Evaluated for Surgical Therapy
The objective of this study is to develop methods for in vivo MRI detection of abnormal cochlear nerve and auditory brainstem pathway pathology that will ...Phase N/A Non-Interventional
Accepts Healthy Volunteer
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Undiagnosed Diseases Program (UDP)
The NYU Undiagnosed Diseases Program (UDP) is a research initiative of the Center for Human Genetics & Genomics dedicated to uncovering the genetic causes of rare ...Phase N/A Non-Interventional
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THE PROSPECTIVE NATURAL HISTORY OF FAMILIAL DYSAUTONOMIA
Our ultimate goal is to develop new treatments for patients with familial dysautonomia (FD, OMIM 223900). We also want to learn which specific nerve populations ...Phase N/A Non-Interventional
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Gaucher Disease Outcome Survey (GOS)
The Gaucher Outcome Survey (GOS) is a long term observational survey. This survey aims to collect as much information as possible from as many Gaucher ...Phase N/A Non-Interventional
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Risk factors for sudden unexplained death in epilepsy (SUDEP)
The registry is a database created to document SUDEP (sudden unexplained death in epilepsy patients) cases. Our goals are to increase knowledge and awareness about ...Phase
Non-Interventional
Accepts Healthy Volunteer
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ANBL1531: A Phase 3 Study of 131I-Metaiodobenzylguanidine (131I-MIBG) or Crizotinib Added to Intensive Therapy for Children with Newly Diagnosed High-Risk Neuroblastoma (NBL) (IND# 134379)
Despite recent improvements in outcome for children with newly diagnosed high-risk neuroblastoma, cure rates remain unsatisfactory. Further, these gains have been the result of interventions ...Phase
Interventional
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Anomalous Aortic Origin of a Coronary Artery (AAOCA): Establishing a Multi-Institutional Registry
This is a retrospective and longitudinal cohort study. Subjects will be enrolled either when identified from medical records or when diagnosed with AAOCA. Baseline demographics ...Phase N/A Non-Interventional
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Study of a Prospective Adult Research Cohort with Inflammatory Bowel Disease (SPARC IBD)
IBD Plexus is a research and information exchange platform whose goal is to accelerate research and transform the care of patients with IBD. IBD Plexus ...Phase N/A Non-Interventional
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The Role of Residual Hearing in Cochlear Implant Outcomes
Cochlear implants (CIs) have the potential to restore high frequency hearing electrically while maintaining residual low frequency hearing, allowing for simultaneous electric and acoustic listening ...Phase N/A Non-Interventional
Accepts Healthy Volunteer
