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Site for WUH TrialNet: NATURAL HISTORY STUDY OF THE DEVELOPMENT OF TYPE 1 DIABETES
Site for The TrialNet Natural History Study of the Development of T1D is divided into Screening and Monitoring stages. Each stage will require separate informed ...Phase N/A
Non-Interventional
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Auditory Pathway Mapping in Pediatric Patients with Sensorineural Hearing Loss Being Evaluated for Surgical Therapy
The objective of this study is to develop methods for in vivo MRI detection of abnormal cochlear nerve and auditory brainstem pathway pathology that will ...Phase N/A Non-Interventional
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Genetic evaluation of patients with undiagnosed diseases
The purpose of this study is to use extensive sequencing of the DNA (genetic material inherited from parents) or RNA (transcripts of the DNA), and ...Phase N/A Non-Interventional
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THE PROSPECTIVE NATURAL HISTORY OF FAMILIAL DYSAUTONOMIA
Our ultimate goal is to develop new treatments for patients with familial dysautonomia (FD, OMIM 223900). We also want to learn which specific nerve populations ...Phase N/A Non-Interventional
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Gaucher Disease Outcome Survey (GOS)
The Gaucher Outcome Survey (GOS) is a long term observational survey. This survey aims to collect as much information as possible from as many Gaucher ...Phase N/A Non-Interventional
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Anomalous Aortic Origin of a Coronary Artery (AAOCA): Establishing a Multi-Institutional Registry
This is a retrospective and longitudinal cohort study. Subjects will be enrolled either when identified from medical records or when diagnosed with AAOCA. Baseline demographics ...Phase N/A Non-Interventional
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Ascertaining Environmental Contributors to Disease
This study will create a biorepository to study environmental contributors to disease.Phase N/A Non-Interventional
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Study of a Prospective Adult Research Cohort with Inflammatory Bowel Disease (SPARC IBD)
IBD Plexus is a research and information exchange platform whose goal is to accelerate research and transform the care of patients with IBD. IBD Plexus ...Phase N/A Non-Interventional
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The Role of Residual Hearing in Cochlear Implant Outcomes
Cochlear implants (CIs) have the potential to restore high frequency hearing electrically while maintaining residual low frequency hearing, allowing for simultaneous electric and acoustic listening ...Phase N/A Non-Interventional
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VEDOKIDS study: Predicting response to Vedolizumab in Pediatric Inflammatory Bowel Diseases including drug levels: a multi-center prospective Pan- European cohort study (P-ECCO and ESPGHAN)
Vedolizumab (VDZ) is a humanized immunoglobulin G1 monoclonal antibody acting against a4ß7 integrin which modulates lymphocyte trafficking in the gut. Results from the adult GEMINI-1 ...Phase N/A Non-Interventional
