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A Placebo-Controlled Efficacy in iNPH Shunting (PENS) Trial
This is a multicenter, randomized, blinded, placebo-controlled study of patients with suspected idiopathic normal pressure hydrocephalus (iNPH). The purpose of this study is to evaluate ... -
A Wearable Remote Data Capture Solution for Home-Based Gait Assessment in Multiple Sclerosis
The purpose of this study is to validate a quantitative way to assess mobility (e.g., gait) at-home in patients with multiple sclerosis (MS). The ... -
A Computational Approach to Optimal Deactivation of Cochlear Implant Electrodes
The goal of the present study is to use computationally driven models of speech understanding in Cochlear Implant (CI) users to guide the search for ... -
CHORD1 CHOlesterol Lowering and Residual Risk in Diabetes Type 1
This is a prospective, interventional, cohort study, meaning that researchers will follow and observe a group of enrolled study participants over a period of time ... -
Digital Phenotyping: A Novel Method to Predict Proximal Suicide Risk in Youth
The goal of this study is to collect data from smartphone keyboards about typing behavior (but not content), in addition to traditional assessments like questionnaires ... -
An Observational Longitudinal Prospective Long-Term Registry of Patients With Hypophosphatasia
This multinational, multicenter, observational, prospective, long-term registry is designed to collect data on epidemiology, hypophosphatasia (HPP) history, clinical course, symptoms (including systemic aspects of disease ... -
Pfizer Registry of Outcomes in Growth hormone RESearch (PROGRES): A Multi-Country Non-Interventional Prospective Cohort Study Among Patients with Human Growth Hormone (hGH) Treatments Under Routine Clinical Care
This study will explore how safe and effective hGH treatments are in the long term. This study is “non-interventional” because it collects information only. -
Conquering Neuroinflammation and Epilepsies Consortium
The purpose of this study is learn more about the natural history and disease course of patients affected by neuroinflammatory conditions, including autoimmune encephalitis and ... -
International CDKL5 Clinical Research Network
This study is designed for the researchers to learn more about CDKL5 deficiency disorder and how to best measure outcomes in those affected by it. -
Quadri-Nuclear MRI to Study Brain Energy Metabolism
The purpose of this study is to investigate a new method of magnetic resonance imaging (MRI) that could provide new information about the brain structure ...