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An Observational Longitudinal Prospective Long-Term Registry of Patients With Hypophosphatasia
This multinational, multicenter, observational, prospective, long-term registry is designed to collect data on epidemiology, hypophosphatasia (HPP) history, clinical course, symptoms (including systemic aspects of disease ... -
Conquering Neuroinflammation and Epilepsies Consortium
The purpose of this study is learn more about the natural history and disease course of patients affected by neuroinflammatory conditions, including autoimmune encephalitis and ... -
International CDKL5 Clinical Research Network
This study is designed for the researchers to learn more about CDKL5 deficiency disorder and how to best measure outcomes in those affected by it. -
Quadri-Nuclear MRI to Study Brain Energy Metabolism
The purpose of this study is to investigate a new method of magnetic resonance imaging (MRI) that could provide new information about the brain structure ... -
Technical Development Observational study for Microstructure MRI
The Department of Radiology develops new MRI techniques. The hope is to better find the presence of disease or injury earlier than the techniques that ... -
Diabetic Retinopathy Public Health and Screening Questionnaire
The objective of this study is to administer a phone survey to gain a deeper understanding of the subjective patients experience related to diabetic retinopathy ... -
The Role of Exercise in the Consolidation of Fear Extinction Learning in Adults with High Anxiety Sensitivity
The purpose of this study is to investigate differences in extinction learning (measured by skin conductance [sweating] and heart rate) in adults with high anxiety ... -
A Multicenter Interventional Post-marketing Randomized Double-blind Crossover Study to Evaluate the Clinical Safety and Efficacy of AbobotulinumtoxinA (Dysport ) in Comparison with OnabotulinumtoxinA (Botox ) when Treating Adults with Upper Limb Spas
The purpose of this research study is to learn about the safety and efficacy of Dysport versus Botox for treating adults with upper limb spasticity ... -
A Novel Remote Patient and Medication Monitoring Solution to Improve Adherence and PerSiStence with Inflammatory Bowel DiSease Therapy ASSIST Study
The purpose of the study is to assess the effectiveness of a remote monitoring system to improve compliance to medical treatment, improve clinical outcomes (symptoms ... -
Endothelial Activation in Gout: Early Markers for Cardiovascular Risk
The purpose of this research study is to investigate blood vessel wall function, measures of inflammation in the blood in people with gout (an inflammatory ...