-
Primary Ciliary Dyskinesia Foundation (PCDF) Registry: A longitudinal study of patients with primary ciliary dyskinesia
PCD Foundation (PCDF) Registry: A longitudinal study of patients with primary ciliary dyskinesia Establishment of a registry will allow for an improved understanding of demographics ...Phase N/A
Non-Interventional
-
Parkinson s Foundation PD GENEration Genetic Registry
The Parkinson’s Foundation PDGENEration Genetic Registry study is a prospective registry study of people who are clinically diagnosed with PD. The participants will consist ...Phase N/A Non-Interventional
-
Digital Phenotyping: A Novel Method to Predict Proximal Suicide Risk in Youth
The goal of this study is to use keyboard metadata, a method of collecting data from written communications entered on iPhones, in addition to traditional ...Phase N/A Non-Interventional
-
Non-Invasive Salivary Biomarkers in Full Term Neonates
Despite modern advances that have greatly improved the health outcomes for infants, the field of neonatology still lacks reliable prognostic tools for many disorders. Non-invasively-obtained ...Phase N/A Non-Interventional
-
NYU Langone IBD Biorepository
We are building a biorepository of samples from patients who have Inflammatory Bowel Diseases and controls. Samples will include blood, stool, and mucosal biopsy samples.Phase N/A Non-Interventional
-
Evaluating a Noise Reduction algorithm with Cochlear Implant Users
In this study, a noise reduction algorithm will be implemented in various listening situations to evaluate its effectiveness in improving speech understanding for 60 cochlear ...Phase N/A Non-Interventional
-
A Single-Center Observational Barrier Assessment and Implementation of a Tailored Educational Intervention for Families of Children with Epilepsy in a Medically Underserved Population
This study aims to identify the socioeconomic/cultural disparities and patient perspective barriers in a medically underserved population (Bellevue Hospital). This will be followed by ...Phase N/A Non-Interventional
-
Cerliponase alfa Observational Study
This is a, multicenter, observational study for patients with a confirmed diagnosis of neuronal ceroid lipofuscinosis type 2 (CLN2 disease), also known as TPP1 deficiency ...Phase N/A Non-Interventional
-
Characterization and Investigation of Hematologic Disorders
The purpose of this study is to maintain a research registry and biorepository for patients with disorders of the hematologic system and enable the use ...Phase N/A Non-Interventional
-
Role of the oral cavity in inflammatory bowel disease
The purpose of this investigation is to create a study bank of clinical data, peripheral blood, oral and gut microbiomes, and mucosal pinch biopsy specimens ...Phase N/A Non-Interventional
