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Risk factors for sudden unexplained death in epilepsy (SUDEP)
The registry is a database created to document SUDEP (sudden unexplained death in epilepsy patients) cases. Our goals are to increase knowledge and awareness about ...Phase
Non-Interventional
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OurChild: A Health IT Solution to Reduce Minority Health Disparities
Chinese American immigrant families are a fast-growing immigrant group with unmet early childhood mental health needs. We propose to design, build, and implement OurChild, an ...Phase
Interventional
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Pediatric and Adult Research for Vaccines (ParVax) Registry
The purpose of this study is to create and maintain a research recruitment registry of individuals interested in participating in research for vaccine trials executed ...Phase
Non-Interventional
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Cystic Fibrosis Patient Registry
The Cystic Fibrosis Patient Registry has served as the primary database for epidemiologic reports published since 1985; a version of the CF Patient Registry began ...Phase
Non-Interventional
